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Director, Rare Disease Network

LifeArc

London, England, United Kingdom fulltime July 14, 2026
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Vacancy Description

The role
We looking for a skilled leader to develop and manage LifeArc's Rare Disease Network. This is an exciting opportunity to build a network that will identify unmet needs, foster collaboration, and ensure equitable access for rare disease patients. The role can be based in London or Manchester.

About you
  • Experience working in a rare disease network or clinical database environment
  • A strong understanding of the rare disease landscape and patient journey
  • Proven ability to build and maintain relationships with clinicians, researchers, and patient organisations
  • Strategic thinking and vision setting for network growth
  • Excellent communication and influencing skills
  • Experience in budget management and reporting
  • Background in life sciences, healthcare, or a related field

Why join us?
LifeArc is a medical research charity with a mission to improve patient lives. You'll join a passionate t...

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